The impact of the COVID-19 pandemic on people with disabilities: Perspectives from people with disabilities
stmm. 2023 (2): 182-192
DOI https://doi.org/10.15407/sociology2023.02.182
Full text: http://stmm.in.ua/archive/ukr/2023-2/11.pdf
KIRILL SHARAPOV, PhD in Politics, University of Glasgow; Associate Professor at the School of Applied Sciences, Edinburgh Napier University (Sighthill Campus, Sighthill Court, Edinburgh, EH11 4BN, the United Kingdom)
k.sharapov@napier.ac.uk
https://orcid.org/0000-0002-5781-2953
DAVID ANDERSON, Research Assistant at the School of Applied Sciences, Edinburgh Napier University (Sighthill Campus, Sighthill Court, Edinburgh, EH11 4BN, the United Kingdom)
D.Anderson3@napier.ac.uk
https://orcid.org/0000-0003-0963-9874
OLGA BUROVA, Candidate of Sciences in Sociology, Research Fellow at the Department of Sociopolitical Processes, Institute of Sociology, National Academy of Sciences of Ukraine (12, Shovkovychna St., Kyiv, 01021); WAPOR National representative for Ukraine (WAPOR University of Nebraska-Lincoln Department of Political Science, 1019, Oldfather Hall Lincoln, NE 68588-0367, USA)
olga.burova@i-soc.org.ua
https://orcid.org/0000-0002-4149-8859
VIKTORIA NAZARENKO, Secretary General of the National Assembly of People with Disabilities of Ukraine (8/5A, Reitarska St., r. 110, Kyiv, 01030)
office-naiu@ukr.net
OLENA POLISHCHUK, Employee at the National Assembly of People with Disabilities of Ukraine (8/5A, Reitarska St., r. 110, Kyiv, 01030)
office-naiu@ukr.net
In this paper, we relied on co-researching with persons with disabilities in Ukraine not as a means of understanding the epidemiology of this disease, or of its impact on human health. We approached COVID-19 and the Ukrainian authorities’ response to the pandemic as proxy, or a magnifying glass, to better understand the everyday life of persons with disabilities in Ukraine, and to explore how things could and should be done differently in the context of public health or other emergencies. The pandemic unsettled and disrupted the meanings of personal space and time for virtually everyone across the world; it unmasked, reinforced and reconfigured existing inequalities, cascading them into further injustices of (im)mobility and access. This is especially true for persons with disabilities. Kennedy-Macfoy uses an analogy in relation to COVID-19. She describes COVID-19 as a ‘looking glass’. Our ‘COVID-19 as a looking glass’ findings presented in both parts of the project report paint a picture of entrenched economic and social deprivations experienced by people with disabilities in Ukraine, patterned by the intersecting and reinforcing inequalities of gender, age, locality, displacement, and socio-economic status, and exacerbated rather than created by the pandemic.
This article is devoted to the second part of the extensive study ‘The Impact of the COVID-19 Pandemic on People with Disabilities in Ukraine’. In this article, the authors elaborate on the methodology of the second phase of the study and the views of people with disabilities on the issues of communication about the COVID pandemic and access to medical care during a pandemic for people with disabilities.
Keywords: COVID-19, disability, internal displacement, human rights, disability organizations, inequality, discrimination, accessibility
References
Anderson, D., & Sharapov, K. (2022). Disability, displacement and COVID-19 in Ukraine: A scoping literature review of emerging challenges and vulnerabilities. Edinburgh, Scotland: Arts and Humanities Research Council.
Charlton, J.I. (1998). Nothing About Us Without Us: Disability oppression and empowerment. Berkeley: University of California Press. https://doi.org/10.1525/9780520925441
Danyliv, A., Stepurko, T., Gryga, I., Pavlova, M., & Groot, W. (2012). Is there a place for the patient in the Ukrainian health care system? Patient payment policies and investment priorities in health care in Ukraine. Society and Economy, 34(2), 273-291. https://doi.org/10.1556/SocEc.34.2012.2.6
Depoux, A., Martin, S., Karafillakis, E., Preet, R., Wilder-Smith, A., & Larson, H. (2020). The pandemic of social media panic travels faster than the COVID-19 outbreak. Journal of Travel Medicine, 27(3), taaa031. https://dx.doi.org/10.1093/jtm/taaa031 https://doi.org/10.1093/jtm/taaa031
Dickinson, H., & Yates, S. (2020). More than isolated: The experience of children and young people with disability and their families during the COVID-19 pandemic (Report prepared for Children and Young People with Disability Australia). Retrieved from: https://www.cyda.org.au/images/pdf/covid_report_compressed_1.pdf
Fridman, I., Lucas, N., Henke, D. & Zigler, C.K. (2020). Association between public knowledge about COVID-19, trust in information sources, and adherence to social distancing: Cross-sectional survey. JMIR (Journal of Medical Internet Research) Public Health and Surveillance, 6(3), e22060. https://dx.doi.org/10.2196/22060 https://doi.org/10.2196/22060
Gallotti, R., Valle, F., Castaldo, N., Sacco, P., & De Domenico, M. (2020). Assessing the risks of 'infodemics' in response to COVID-19 epidemics. Nature Human Behaviour, 4(12), 1285-1293. https://dx.doi.org/10.1038/s41562-020-00994-6 https://doi.org/10.1038/s41562-020-00994-6
Kennedy-Macfoy, M. (2021). Through the COVID-19 looking glass: Resisting always already known injustice and shaping a 'new normal.' European Journal of Women's Studies, 28(1), 4-9. https://dx.doi.org/10.1177/1350506820976908 https://doi.org/10.1177/1350506820976908
Office of the United Nations High Commissioner for Human Rights (2021, July 19). A/76/146: Report on the rights of persons with disabilities in the context of armed conflict. Retrieved from: https://www.ohchr.org/en/documents/thematic-reports/a76146-report-rights-persons-disabilities-context-armed-conflict
Sharapov, K., Anderson, D., Burova, O., Nazarenko, V., & Polishchuk, O. (2022). The impact of the COVID-19 pandemic on people with disabilities in Ukraine: Perspectives of the organisations of persons with disabilities. Sociology: Theory, Methods, Marketing, 2, 177-186. https://doi.org/10.4324/9781003241096-13
The World Bank. (2021). Rural population (% of total population) [Table and map]. Retrieved from: https://data.worldbank.org/indicator/SP.RUR.TOTL.ZS
United Nations Department of Economic and Social Affairs (2007, January 24). Convention on the rights of persons with disabilities [A/RES/61/106]. Retrieved from: https://www.un.org/development/desa/disabilities/resources/general-assembly/convention-on-the-rights-of-persons-with-disabilities-ares61106.html
United Nations High Commissioner for Refugees. (2020). Global trends: Forced displacement in 2019. Retrieved from: https://www.unhcr.org/5ee200e37.pdf
United Nations Security Council (2019, June 20). Resolution on the protection of persons with disabilities in armed conflict [S/RES/2475]. Retrieved from: https://documents-dds-ny.un.org/doc/UNDOC/GEN/N19/186/60/PDF/N1918660.pdf
UN Office for the Coordination of Humanitarian Affairs. (2022). Humanitarian needs overview: Ukraine. Retrieved from: https://reliefweb.int/report/ukraine/ukraine-humanitarian-needs-overview-2022-february-2022-enuk
UN Office of the High Commissioner for Human Rights. (2020, October 5). Impact of the COVID-19 pandemic on persons with disabilities in Ukraine [Briefing note]. Retrieved from: https://ukraine.un.org/sites/default/files/2020-11/EN_Briefing_Note_COVID_PwD_0.pdf
Received 27.04.2023
The impact of the COVID-19 pandemic on people with disabilities: Perspectives from people with disabilities
stmm. 2023 (2): 182-192
DOI https://doi.org/10.15407/sociology2023.02.182
Full text: http://stmm.in.ua/archive/ukr/2023-2/11.pdf
KIRILL SHARAPOV, PhD in Politics, University of Glasgow; Associate Professor at the School of Applied Sciences, Edinburgh Napier University (Sighthill Campus, Sighthill Court, Edinburgh, EH11 4BN, the United Kingdom)
k.sharapov@napier.ac.uk
https://orcid.org/0000-0002-5781-2953
DAVID ANDERSON, Research Assistant at the School of Applied Sciences, Edinburgh Napier University (Sighthill Campus, Sighthill Court, Edinburgh, EH11 4BN, the United Kingdom)
D.Anderson3@napier.ac.uk
https://orcid.org/0000-0003-0963-9874
OLGA BUROVA, Candidate of Sciences in Sociology, Research Fellow at the Department of Sociopolitical Processes, Institute of Sociology, National Academy of Sciences of Ukraine (12, Shovkovychna St., Kyiv, 01021); WAPOR National representative for Ukraine (WAPOR University of Nebraska-Lincoln Department of Political Science, 1019, Oldfather Hall Lincoln, NE 68588-0367, USA)
olga.burova@i-soc.org.ua
https://orcid.org/0000-0002-4149-8859
VIKTORIA NAZARENKO, Secretary General of the National Assembly of People with Disabilities of Ukraine (8/5A, Reitarska St., r. 110, Kyiv, 01030)
office-naiu@ukr.net
OLENA POLISHCHUK, Employee at the National Assembly of People with Disabilities of Ukraine (8/5A, Reitarska St., r. 110, Kyiv, 01030)
office-naiu@ukr.net
In this paper, we relied on co-researching with persons with disabilities in Ukraine not as a means of understanding the epidemiology of this disease, or of its impact on human health. We approached COVID-19 and the Ukrainian authorities’ response to the pandemic as proxy, or a magnifying glass, to better understand the everyday life of persons with disabilities in Ukraine, and to explore how things could and should be done differently in the context of public health or other emergencies. The pandemic unsettled and disrupted the meanings of personal space and time for virtually everyone across the world; it unmasked, reinforced and reconfigured existing inequalities, cascading them into further injustices of (im)mobility and access. This is especially true for persons with disabilities. Kennedy-Macfoy uses an analogy in relation to COVID-19. She describes COVID-19 as a ‘looking glass’. Our ‘COVID-19 as a looking glass’ findings presented in both parts of the project report paint a picture of entrenched economic and social deprivations experienced by people with disabilities in Ukraine, patterned by the intersecting and reinforcing inequalities of gender, age, locality, displacement, and socio-economic status, and exacerbated rather than created by the pandemic.
This article is devoted to the second part of the extensive study ‘The Impact of the COVID-19 Pandemic on People with Disabilities in Ukraine’. In this article, the authors elaborate on the methodology of the second phase of the study and the views of people with disabilities on the issues of communication about the COVID pandemic and access to medical care during a pandemic for people with disabilities.
Keywords: COVID-19, disability, internal displacement, human rights, disability organizations, inequality, discrimination, accessibility
References
Anderson, D., & Sharapov, K. (2022). Disability, displacement and COVID-19 in Ukraine: A scoping literature review of emerging challenges and vulnerabilities. Edinburgh, Scotland: Arts and Humanities Research Council.
Charlton, J.I. (1998). Nothing About Us Without Us: Disability oppression and empowerment. Berkeley: University of California Press. https://doi.org/10.1525/9780520925441
Danyliv, A., Stepurko, T., Gryga, I., Pavlova, M., & Groot, W. (2012). Is there a place for the patient in the Ukrainian health care system? Patient payment policies and investment priorities in health care in Ukraine. Society and Economy, 34(2), 273-291. https://doi.org/10.1556/SocEc.34.2012.2.6
Depoux, A., Martin, S., Karafillakis, E., Preet, R., Wilder-Smith, A., & Larson, H. (2020). The pandemic of social media panic travels faster than the COVID-19 outbreak. Journal of Travel Medicine, 27(3), taaa031. https://dx.doi.org/10.1093/jtm/taaa031 https://doi.org/10.1093/jtm/taaa031
Dickinson, H., & Yates, S. (2020). More than isolated: The experience of children and young people with disability and their families during the COVID-19 pandemic (Report prepared for Children and Young People with Disability Australia). Retrieved from: https://www.cyda.org.au/images/pdf/covid_report_compressed_1.pdf
Fridman, I., Lucas, N., Henke, D. & Zigler, C.K. (2020). Association between public knowledge about COVID-19, trust in information sources, and adherence to social distancing: Cross-sectional survey. JMIR (Journal of Medical Internet Research) Public Health and Surveillance, 6(3), e22060. https://dx.doi.org/10.2196/22060 https://doi.org/10.2196/22060
Gallotti, R., Valle, F., Castaldo, N., Sacco, P., & De Domenico, M. (2020). Assessing the risks of 'infodemics' in response to COVID-19 epidemics. Nature Human Behaviour, 4(12), 1285-1293. https://dx.doi.org/10.1038/s41562-020-00994-6 https://doi.org/10.1038/s41562-020-00994-6
Kennedy-Macfoy, M. (2021). Through the COVID-19 looking glass: Resisting always already known injustice and shaping a 'new normal.' European Journal of Women's Studies, 28(1), 4-9. https://dx.doi.org/10.1177/1350506820976908 https://doi.org/10.1177/1350506820976908
Office of the United Nations High Commissioner for Human Rights (2021, July 19). A/76/146: Report on the rights of persons with disabilities in the context of armed conflict. Retrieved from: https://www.ohchr.org/en/documents/thematic-reports/a76146-report-rights-persons-disabilities-context-armed-conflict
Sharapov, K., Anderson, D., Burova, O., Nazarenko, V., & Polishchuk, O. (2022). The impact of the COVID-19 pandemic on people with disabilities in Ukraine: Perspectives of the organisations of persons with disabilities. Sociology: Theory, Methods, Marketing, 2, 177-186. https://doi.org/10.4324/9781003241096-13
The World Bank. (2021). Rural population (% of total population) [Table and map]. Retrieved from: https://data.worldbank.org/indicator/SP.RUR.TOTL.ZS
United Nations Department of Economic and Social Affairs (2007, January 24). Convention on the rights of persons with disabilities [A/RES/61/106]. Retrieved from: https://www.un.org/development/desa/disabilities/resources/general-assembly/convention-on-the-rights-of-persons-with-disabilities-ares61106.html
United Nations High Commissioner for Refugees. (2020). Global trends: Forced displacement in 2019. Retrieved from: https://www.unhcr.org/5ee200e37.pdf
United Nations Security Council (2019, June 20). Resolution on the protection of persons with disabilities in armed conflict [S/RES/2475]. Retrieved from: https://documents-dds-ny.un.org/doc/UNDOC/GEN/N19/186/60/PDF/N1918660.pdf
UN Office for the Coordination of Humanitarian Affairs. (2022). Humanitarian needs overview: Ukraine. Retrieved from: https://reliefweb.int/report/ukraine/ukraine-humanitarian-needs-overview-2022-february-2022-enuk
UN Office of the High Commissioner for Human Rights. (2020, October 5). Impact of the COVID-19 pandemic on persons with disabilities in Ukraine [Briefing note]. Retrieved from: https://ukraine.un.org/sites/default/files/2020-11/EN_Briefing_Note_COVID_PwD_0.pdf
Received 27.04.2023