Integrity and credibility issues in strategic information on MSM and transgenders in Eastern Europe and Central Asia countries
stmm. 2023 (2): 162-181
DOI https://doi.org/10.15407/sociology2023.02.162
Full text: http://stmm.in.ua/archive/ukr/2023-2/10.pdf
MAKSYM KASIANCZUK, PhD, Research Fellow at the Department of Social Expertise, Institute of Sociology, NAS of Ukraine, Strategic Information Adviser, Eurasian Coalition on Health, Rights, Gender and Sexual Diversity (ECOM) (142, Pärnu maantee, Tallinn, Estonia, 11317)
maxim.kasianczuk@gmail.com
https://orcid.org/0000-0003-0701-3595
SERGO CHIKHLADZE, MD, PhD, independent researcher in public health, Tbilisi, Georgia
sergochikhladze@yahoo.com
VITALY DJUMA, Master of International Public Health, Executive Director, Eurasian Coalition on Health, Rights, Gender and Sexual Diversity (ECOM) (142, Pärnu maantee, Tallinn, Estonia, 11317)
vitaly@ecom.ngo
https://orcid.org/0000-0003-0399-5237
The article describes the results of an expert survey of activists from two HIV-vulnerable communities (men who have sex with men (MSM) and transgender people), as well as public health professionals from seven countries in the Eastern Europe and Central Asia region regarding the state of strategic information (SI) regarding MSM and trans people in the context of HIV at the national level (quality, integrity, relevance and use of data). An analysis of scientific literature on studies of these communities was also used. According to the level of completeness and quality of SI, the studied countries can be ranked in descending order as follows: Ukraine, Kyrgyzstan, Georgia, Armenia, North Macedonia, Belarus, Estonia. At the same time, information about transgender people is available only in Armenia, Georgia, Kyrgyzstan and Ukraine. The integrity, relevance and use of strategic information in countries mostly depend on the availability of international financial and technical assistance resources, as well as the institutional capacity of organizations of vulnerable communities, in particular in the area of advocacy of the interests of the communities they represent in state authorities. The quality of the available information is also determined by other factors: differences in the definitions of the studied communities (in particular, the inclusion of trans women in the group of men who have sex with men), failure to take into account migration processes, the size and structure of general populations (mostly unknown), the impossibility of constructing non-random samples of sufficient size or insufficient quality of construction of pseudo-random samples, lack of coverage of the entire territory of the respective countries (only the capital and sometimes large cities), etc. In general, with few exceptions, the strategic information available in the Eastern Europe and Central Asia region on MSM and trans people in the context of HIV is incomplete, underutilized and of limited validity.
Keywords: MSM, transgenders, Eastern Europe and Central Asia, behavioral research
References
Aabrams, V., Arumetsa, S., Ird, K., Kalkun, A., Koppel, T., Marling, R., Pushaw, B., Põldsam, R., Rünk, M., Stahl, K., Taavetti, R., Vinnal, H. (2022). Kalevi alt välja: LGBT+ inimeste lugusid 19. ja 20. sajandi Eestist. Eesti LGBT Ühing.
Abdul-Quader, A., Berry, M., Bingham, T., Burnett, J., Dong, M., Drake, A., Hakim, A., Hladik, W., Marande, A., McIntyre, A., Murrill, C., Adhikary, R., Saidel, T., Kelly-Hanku, A., Lew, K. (2017). Biobehavioural Survey Guidelines for Populations at Risk for HIV. Geneva: World Health Organization. Retrieved from: https://www.who.int/publications/i/item/978-92-4-151301-2
Andeva, M. (2017). Migration movements and their implications for Republic of Macedonia. International Journal of Social Science Research, 5 (2), 1. https://doi.org/10.5296/ijssr.v5i2.10918 https://doi.org/10.5296/ijssr.v5i2.10918
Baijal, P., Kort, R. (2009). XVII International AIDS Conference: From Evidence to Action - Regional focus. Journal of the International AIDS Society, 12, S6-S6. https://doi.org/10.1186/1758-2652-12-S1-S6 https://doi.org/10.1186/1758-2652-12-S1-S6
Baral, S.D., Poteat, T., Strömdahl, S., Wirtz, A.L., Guadamuz, T.E., Beyrer, C. (2013). Worldwide burden of HIV in transgender women: a systematic review and meta-analysis. The Lancet Infectious Diseases, 13 (3), 214-222. https://doi.org/10.1016/S1473-3099(12)70315-8 https://doi.org/10.1016/S1473-3099(12)70315-8
Chikhladze, S., Kasianczuk, M., Orbelyan, S., Sheremet, S. (2020). Two years of progress: MSM and trans community participation in HIV decision-making processes in Armenia, Belarus, Georgia, Kyrgyzstan, North Macedonia, Tajikistan and Ukraine. Tallinn: ECOM. Retrieved from: https://ecom.ngo/library/participation_study-2019_en.
Chikovani, I., Shengelia, N., Sulaberidze, L., Marjanishvili, N., Tsereteli, N. (2018). Population Size Estimation Men Who Have Sex with Men in Georgia, 2018. Tbilisi: Curatio Foundation. Retrieved from: http://curatiofoundation.org/wp-content/uploads/2022/03/MSM-2018_PSE-Report_FV_Eng.pdf
Decree of the CMU of November 27, 2019 No. 1415-r «On the approval of the State strategy in the field of combating HIV infection/AIDS, tuberculosis and viral hepatitis for the period up to 2030» (2019). Retrieved from: https://www.kmu.gov.ua/npas/pro-shvalennya-derzhavnoyi-strategi-a1415r
Decree of the Government of the Kyrgyz Republic dated December 30, 2017 No. 852 «On the Program of the Government of the Kyrgyz Republic to overcome HIV infection in the Kyrgyz Republic for 2017-2021» (2017). [In Russian]. Retrieved from: https://www.gov.kg/ru/npa/s/618.
Global AIDS Monitoring 2020: Guidance: Indicators for monitoring the 2016 Political Declaration on Ending AIDS (2020). Geneva: WHO/UNAIDS. Retrieved from: https://www.aidsdatahub.org/resource/global-aids-monitoring-2020
Grigoryan, S., Ohanyan, R., Papoyan, A., Petrosyan, Z., Asryan, M., Asatryan, A. (2018). Integrated Biological-Behavioral Surveilance Survey among People who inject Drugs, Female Sex Workers, Men who have Sex with Men and Transgender Persons. Retrieved from: https://ecom.ngo/wp-content/uploads/2018/12/IBBS_ARMENIA_2018_eng_FINAL.pdf
Guidelines on Estimating the Size of Populations Most at Risk to HIV (2010). Geneva: WHO.
HIV Cascade Framework for Key Populations (2015). USAID. Retrieved from: https://www.fhi360.org/sites/default/files/media/documents/linkages-hiv-cascade-framework-oct15.pdf
In Danger: UNAIDS Global AIDS Update 2022 (2022). Geneva: UNAIDS. Retrieved from: https://www.unaids.org/sites/default/files/media_asset/2022-global-aids-update_en.pdf
Kasianczuk, M. et al. (2023). Population Size Estimation of Transgender and Non-Binary People in Georgia / M. Kasianczuk, B. Gabadadze, V. Djuma, L. Miruashvili, D. Orsekov, T. Sarasfati (ECOM, TEMIDA). Tallinn, Tbilisi, 2023.
Kasianczuk, M., Trofymenko, O. (2020). Analytical report: assessment of the number of transgender people in Ukraine. [In Ukrainian]. Kyiv: PHC. Retrieved from: http://csep.org.ua/wp-content/uploads/2020/12/Zvit_Ukr.pdf.
Kasianczuk, M., Trofymenko, O., Bilous, Ye., Sazonova, Ya. (2017). Monitoring of behaviour and HIV-prevalence among men having sex with men (national part). [In Ukrainian]. Kyiv: Alliance of public health.
Kasianczuk, M.H., Trofymenko, O.V., Sheremet, S.P. (2022). Transgender people in Ukraine - the communities within the community (the results of the expert survey). Ukrainian Society, 80 (1), 99-115. https://doi.org/10.15407/socium2022.01.099 https://doi.org/10.15407/socium2022.01.099
Kovtun, O., Salyuk, T., Sakhno, Yu., Paniotto, V., Kharchenko, N., Lyshtva, O. (2021). Estimation of the number of key groups, bridge groups and other categories of Ukrainian population, 2020: The Network Scale Up Method. [In Ukrainian]. Kyiv: Alliance of public health. Retrieved from: https://aph.org.ua/wp-content/uploads/2021/05/Scale-up_2020_ukr_web_fin0921.pdf.
Kuts, S., Kasianchuk, M. (2019). Two Years of Development Assessment of changes in the organizational capacity and level of development of sub-recipients of the Eurasian Coalition on Male Health 2017-2019. [In Russian]. Tallinn: ECOM. Retrieved from: https://ecom.ngo/library/ecat.
Kvaratskhelia, M. (2019). National report on the violation of human rights of gay men, other MSM and trans people, in particular right to health, in Georgia in 2018. Tbilisi: Equality movement NGO. Retreived from: https://ecom.ngo/library/national_report_georgia_2019_en
Marcus, U., Hickson, F., Weatherburn, P., Schmidt, A.J. (2013). Estimating the size of the MSM populations for 38 European countries by calculating the survey-surveillance discrepancies (SSD) between self-reported new HIV diagnoses from the European MSM internet survey (EMIS) and surveillance-reported HIV diagnoses am. BMC Public Health, 13 (1), 919. https://doi.org/10.1186/1471-2458-13-919 https://doi.org/10.1186/1471-2458-13-919
Marshall, Z., Welch, V., Minichiello, A., Swab, M., Brunger, F., Kaposy, C. (2019). Documenting Research with Transgender, Nonbinary, and Other Gender Diverse (Trans) Individuals and Communities: Introducing the Global Trans Research Evidence Map. Transgender Health, 4 (1), 68-80. https://doi.org/10.1089/trgh.2018.0020 https://doi.org/10.1089/trgh.2018.0020
Mikich, V., Kuzmanovska, H., Kochinski, D., Boshevska, H., Osmani, D.S., Ilioska, R., Yordanov, Z., Senikh, A., Memti, Sh. (2019). Report on bio-bihavioural study and population size estimation of men having sex with men in Skopje, North Macedonia, 2017-2018. [In Macedonian]. Retrieved from: http://iph.mk/wp-content/uploads/2019/03/RDS-MSM-2018.pdf.
Ney, M., Rannaääre, K., Raud, K. (Eds.). (2018). Eesti LGBT+ õpilaste koolikeskkonna uuring. Tallinn: Eesti LGBT Ühing.
Privalov, Yu., Alyokhin, O., Belov, O., Zarytski, A., Kasianczuk, M., Semenova, O., Trofymenko, O., Sheremet, S. (2016). Situation analysis of LGBT status in Ukraine. [In Ukrainian]. Kyiv.
Rao, A., Schwartz, S., Sabin, K., Wheeler, T., Zhao, J., Hargreaves, J., Baral, S. (2018). HIV-related data among key populations to inform evidence-based responses: protocol of a systematic review. Systematic Reviews, 7 (1), 220. https://doi.org/10.1186/s13643-018-0894-3 https://doi.org/10.1186/s13643-018-0894-3
Rao, A., Schwartz, S., Viswasam, N., Rucinski, K., van Wickle, K., Sabin, K., Wheeler, T., Zhao, J., Baral, S. (2022). Evaluating the quality of HIV epidemiologic evidence for populations in the absence of a reliable sampling frame: a modified quality assessment tool. Annals of Epidemiology, 65, 78-83. https://doi.org/10.1016/j.annepidem.2021.07.009 https://doi.org/10.1016/j.annepidem.2021.07.009
Recommended population size estimates of men who have sex with men (2020). Geneva: UNAIDS. [In Ukrainian]. Retrieved from: https://www.unaids.org/ru/resources/documents/2020/recommended-population-size-estimates-of-men-who-have-sex-with-men.
Reisner, S.L., Poteat, T., Keatley, J., Cabral, M., Mothopeng, T., Dunham, E., Holland, C.E., Max, R., Baral, S. D. (2016). Global health burden and needs of transgender populations: a review. The Lancet, 388 (10042), 412-436. https://doi.org/10.1016/S0140-6736(16)00684-X. https://doi.org/10.1016/S0140-6736(16)00684-X
Rüütel, K., Chikhladze, S., Kasianczuk, M. (2018). Assessment of strategic information on men who have sex with men and trans people in Estonia. Tallinn: ECOM, TAI. Retrieved from: https://www.tai.ee/en/node/6158
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Received 07.03.2023
Integrity and credibility issues in strategic information on MSM and transgenders in Eastern Europe and Central Asia countries
stmm. 2023 (2): 162-181
DOI https://doi.org/10.15407/sociology2023.02.162
Full text: http://stmm.in.ua/archive/ukr/2023-2/10.pdf
MAKSYM KASIANCZUK, PhD, Research Fellow at the Department of Social Expertise, Institute of Sociology, NAS of Ukraine, Strategic Information Adviser, Eurasian Coalition on Health, Rights, Gender and Sexual Diversity (ECOM) (142, Pärnu maantee, Tallinn, Estonia, 11317)
maxim.kasianczuk@gmail.com
https://orcid.org/0000-0003-0701-3595
SERGO CHIKHLADZE, MD, PhD, independent researcher in public health, Tbilisi, Georgia
sergochikhladze@yahoo.com
VITALY DJUMA, Master of International Public Health, Executive Director, Eurasian Coalition on Health, Rights, Gender and Sexual Diversity (ECOM) (142, Pärnu maantee, Tallinn, Estonia, 11317)
vitaly@ecom.ngo
https://orcid.org/0000-0003-0399-5237
The article describes the results of an expert survey of activists from two HIV-vulnerable communities (men who have sex with men (MSM) and transgender people), as well as public health professionals from seven countries in the Eastern Europe and Central Asia region regarding the state of strategic information (SI) regarding MSM and trans people in the context of HIV at the national level (quality, integrity, relevance and use of data). An analysis of scientific literature on studies of these communities was also used. According to the level of completeness and quality of SI, the studied countries can be ranked in descending order as follows: Ukraine, Kyrgyzstan, Georgia, Armenia, North Macedonia, Belarus, Estonia. At the same time, information about transgender people is available only in Armenia, Georgia, Kyrgyzstan and Ukraine. The integrity, relevance and use of strategic information in countries mostly depend on the availability of international financial and technical assistance resources, as well as the institutional capacity of organizations of vulnerable communities, in particular in the area of advocacy of the interests of the communities they represent in state authorities. The quality of the available information is also determined by other factors: differences in the definitions of the studied communities (in particular, the inclusion of trans women in the group of men who have sex with men), failure to take into account migration processes, the size and structure of general populations (mostly unknown), the impossibility of constructing non-random samples of sufficient size or insufficient quality of construction of pseudo-random samples, lack of coverage of the entire territory of the respective countries (only the capital and sometimes large cities), etc. In general, with few exceptions, the strategic information available in the Eastern Europe and Central Asia region on MSM and trans people in the context of HIV is incomplete, underutilized and of limited validity.
Keywords: MSM, transgenders, Eastern Europe and Central Asia, behavioral research
References
Aabrams, V., Arumetsa, S., Ird, K., Kalkun, A., Koppel, T., Marling, R., Pushaw, B., Põldsam, R., Rünk, M., Stahl, K., Taavetti, R., Vinnal, H. (2022). Kalevi alt välja: LGBT+ inimeste lugusid 19. ja 20. sajandi Eestist. Eesti LGBT Ühing.
Abdul-Quader, A., Berry, M., Bingham, T., Burnett, J., Dong, M., Drake, A., Hakim, A., Hladik, W., Marande, A., McIntyre, A., Murrill, C., Adhikary, R., Saidel, T., Kelly-Hanku, A., Lew, K. (2017). Biobehavioural Survey Guidelines for Populations at Risk for HIV. Geneva: World Health Organization. Retrieved from: https://www.who.int/publications/i/item/978-92-4-151301-2
Andeva, M. (2017). Migration movements and their implications for Republic of Macedonia. International Journal of Social Science Research, 5 (2), 1. https://doi.org/10.5296/ijssr.v5i2.10918 https://doi.org/10.5296/ijssr.v5i2.10918
Baijal, P., Kort, R. (2009). XVII International AIDS Conference: From Evidence to Action - Regional focus. Journal of the International AIDS Society, 12, S6-S6. https://doi.org/10.1186/1758-2652-12-S1-S6 https://doi.org/10.1186/1758-2652-12-S1-S6
Baral, S.D., Poteat, T., Strömdahl, S., Wirtz, A.L., Guadamuz, T.E., Beyrer, C. (2013). Worldwide burden of HIV in transgender women: a systematic review and meta-analysis. The Lancet Infectious Diseases, 13 (3), 214-222. https://doi.org/10.1016/S1473-3099(12)70315-8 https://doi.org/10.1016/S1473-3099(12)70315-8
Chikhladze, S., Kasianczuk, M., Orbelyan, S., Sheremet, S. (2020). Two years of progress: MSM and trans community participation in HIV decision-making processes in Armenia, Belarus, Georgia, Kyrgyzstan, North Macedonia, Tajikistan and Ukraine. Tallinn: ECOM. Retrieved from: https://ecom.ngo/library/participation_study-2019_en.
Chikovani, I., Shengelia, N., Sulaberidze, L., Marjanishvili, N., Tsereteli, N. (2018). Population Size Estimation Men Who Have Sex with Men in Georgia, 2018. Tbilisi: Curatio Foundation. Retrieved from: http://curatiofoundation.org/wp-content/uploads/2022/03/MSM-2018_PSE-Report_FV_Eng.pdf
Decree of the CMU of November 27, 2019 No. 1415-r «On the approval of the State strategy in the field of combating HIV infection/AIDS, tuberculosis and viral hepatitis for the period up to 2030» (2019). Retrieved from: https://www.kmu.gov.ua/npas/pro-shvalennya-derzhavnoyi-strategi-a1415r
Decree of the Government of the Kyrgyz Republic dated December 30, 2017 No. 852 «On the Program of the Government of the Kyrgyz Republic to overcome HIV infection in the Kyrgyz Republic for 2017-2021» (2017). [In Russian]. Retrieved from: https://www.gov.kg/ru/npa/s/618.
Global AIDS Monitoring 2020: Guidance: Indicators for monitoring the 2016 Political Declaration on Ending AIDS (2020). Geneva: WHO/UNAIDS. Retrieved from: https://www.aidsdatahub.org/resource/global-aids-monitoring-2020
Grigoryan, S., Ohanyan, R., Papoyan, A., Petrosyan, Z., Asryan, M., Asatryan, A. (2018). Integrated Biological-Behavioral Surveilance Survey among People who inject Drugs, Female Sex Workers, Men who have Sex with Men and Transgender Persons. Retrieved from: https://ecom.ngo/wp-content/uploads/2018/12/IBBS_ARMENIA_2018_eng_FINAL.pdf
Guidelines on Estimating the Size of Populations Most at Risk to HIV (2010). Geneva: WHO.
HIV Cascade Framework for Key Populations (2015). USAID. Retrieved from: https://www.fhi360.org/sites/default/files/media/documents/linkages-hiv-cascade-framework-oct15.pdf
In Danger: UNAIDS Global AIDS Update 2022 (2022). Geneva: UNAIDS. Retrieved from: https://www.unaids.org/sites/default/files/media_asset/2022-global-aids-update_en.pdf
Kasianczuk, M. et al. (2023). Population Size Estimation of Transgender and Non-Binary People in Georgia / M. Kasianczuk, B. Gabadadze, V. Djuma, L. Miruashvili, D. Orsekov, T. Sarasfati (ECOM, TEMIDA). Tallinn, Tbilisi, 2023.
Kasianczuk, M., Trofymenko, O. (2020). Analytical report: assessment of the number of transgender people in Ukraine. [In Ukrainian]. Kyiv: PHC. Retrieved from: http://csep.org.ua/wp-content/uploads/2020/12/Zvit_Ukr.pdf.
Kasianczuk, M., Trofymenko, O., Bilous, Ye., Sazonova, Ya. (2017). Monitoring of behaviour and HIV-prevalence among men having sex with men (national part). [In Ukrainian]. Kyiv: Alliance of public health.
Kasianczuk, M.H., Trofymenko, O.V., Sheremet, S.P. (2022). Transgender people in Ukraine - the communities within the community (the results of the expert survey). Ukrainian Society, 80 (1), 99-115. https://doi.org/10.15407/socium2022.01.099 https://doi.org/10.15407/socium2022.01.099
Kovtun, O., Salyuk, T., Sakhno, Yu., Paniotto, V., Kharchenko, N., Lyshtva, O. (2021). Estimation of the number of key groups, bridge groups and other categories of Ukrainian population, 2020: The Network Scale Up Method. [In Ukrainian]. Kyiv: Alliance of public health. Retrieved from: https://aph.org.ua/wp-content/uploads/2021/05/Scale-up_2020_ukr_web_fin0921.pdf.
Kuts, S., Kasianchuk, M. (2019). Two Years of Development Assessment of changes in the organizational capacity and level of development of sub-recipients of the Eurasian Coalition on Male Health 2017-2019. [In Russian]. Tallinn: ECOM. Retrieved from: https://ecom.ngo/library/ecat.
Kvaratskhelia, M. (2019). National report on the violation of human rights of gay men, other MSM and trans people, in particular right to health, in Georgia in 2018. Tbilisi: Equality movement NGO. Retreived from: https://ecom.ngo/library/national_report_georgia_2019_en
Marcus, U., Hickson, F., Weatherburn, P., Schmidt, A.J. (2013). Estimating the size of the MSM populations for 38 European countries by calculating the survey-surveillance discrepancies (SSD) between self-reported new HIV diagnoses from the European MSM internet survey (EMIS) and surveillance-reported HIV diagnoses am. BMC Public Health, 13 (1), 919. https://doi.org/10.1186/1471-2458-13-919 https://doi.org/10.1186/1471-2458-13-919
Marshall, Z., Welch, V., Minichiello, A., Swab, M., Brunger, F., Kaposy, C. (2019). Documenting Research with Transgender, Nonbinary, and Other Gender Diverse (Trans) Individuals and Communities: Introducing the Global Trans Research Evidence Map. Transgender Health, 4 (1), 68-80. https://doi.org/10.1089/trgh.2018.0020 https://doi.org/10.1089/trgh.2018.0020
Mikich, V., Kuzmanovska, H., Kochinski, D., Boshevska, H., Osmani, D.S., Ilioska, R., Yordanov, Z., Senikh, A., Memti, Sh. (2019). Report on bio-bihavioural study and population size estimation of men having sex with men in Skopje, North Macedonia, 2017-2018. [In Macedonian]. Retrieved from: http://iph.mk/wp-content/uploads/2019/03/RDS-MSM-2018.pdf.
Ney, M., Rannaääre, K., Raud, K. (Eds.). (2018). Eesti LGBT+ õpilaste koolikeskkonna uuring. Tallinn: Eesti LGBT Ühing.
Privalov, Yu., Alyokhin, O., Belov, O., Zarytski, A., Kasianczuk, M., Semenova, O., Trofymenko, O., Sheremet, S. (2016). Situation analysis of LGBT status in Ukraine. [In Ukrainian]. Kyiv.
Rao, A., Schwartz, S., Sabin, K., Wheeler, T., Zhao, J., Hargreaves, J., Baral, S. (2018). HIV-related data among key populations to inform evidence-based responses: protocol of a systematic review. Systematic Reviews, 7 (1), 220. https://doi.org/10.1186/s13643-018-0894-3 https://doi.org/10.1186/s13643-018-0894-3
Rao, A., Schwartz, S., Viswasam, N., Rucinski, K., van Wickle, K., Sabin, K., Wheeler, T., Zhao, J., Baral, S. (2022). Evaluating the quality of HIV epidemiologic evidence for populations in the absence of a reliable sampling frame: a modified quality assessment tool. Annals of Epidemiology, 65, 78-83. https://doi.org/10.1016/j.annepidem.2021.07.009 https://doi.org/10.1016/j.annepidem.2021.07.009
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Received 07.03.2023